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Never ending doctors

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Post  Kunoichi Mon Aug 02, 2010 3:14 pm

I think one of the most frustrating things about being chronically ill is the complacency and misunderstanding (and sometimes downright laziness) of some doctors. I get so angry at their lack of knowledge and their lack of being able to diagnose and FIX what's wrong with me. I get so frustrated at having to go to doctor after doctor to try and add one more piece to the puzzle, one more half answer, maybe even some hope. I have seen over 16 specialists in the last 2 years trying to figure out why I have the symptoms. I've had responses such as "you are too young to be sick" to "you are lying" to "I just don't know what is wrong with you". Talk about discouraging!

Taking a step back from that I realize how much pressure and expectation I put on them. These are people who went to school for 8 years, are constantly having to keep up with new information and sometimes really DO NOT KNOW what is wrong with me! Maybe perhaps I can try and recognize that they are human, that some are going to be jerks and egotistical while others may be understanding and empathetic. Well here's hoping I get the latter.

Thanks for reading!

Kunoichi
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Post  curiousitykitten Sun Jun 05, 2011 11:58 am

I get pretty upset when I'm just sent doctor to doctor to doctor.

To be honest, I've given up on getting help for my chronic illness. I feel like noone will take it serioiusly unless something bad happens. And I will not have any part in wasting hours of my life in a doctors office or hospital.

Sometimes I feel like doctors just look at you like a problem in a textbook or a chart or something. Atleast the specialists i see (my family doctor is awesome). They tend to just see what is NOT the problem, which is good and puts my mind at rest. But its not much help when they can't find what is and just leave it as depression or general weakness or something. When you have scarry symptoms they arn't personable about they just kind of nod and are like "yep. sounds about right" or something. I think if you are a doctor you should have some kinds of people skills, because its hard to be confident in your treatment when they don't even seem reassuring.

Like i get they're people and such but, ugh. They could just be so much nicer about what they do... or honest. What if they just said they didn't know?

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Post  Kunoichi Sun Jun 05, 2011 8:22 pm

Yeah I wrote this a year ago and unfortunately not any closer to a diagnosis..but I also have new symptoms which point to some pretty defining illnesses and possibly life threatening. Unfortunately, all I can do is whittle it down. I've been suggested to a teaching hospital now about by every single doctor I meet (including ones I first meet, like my urologist from last week). I think the biggest thing right now isn't so much about the doctors, they perhaps will never find out what is wrong (after all our body is complex). Right now its about gaining support from those around me who do not minimize or belittle what I'm experiencing.
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